Last Updated: March 27, 2026
Privacy Policy for Krabbe Disease
Welcome to Krabbe Disease (the "Website"). This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website, including any other media form, media channel, mobile website, or mobile application related or connected thereto. Please read this privacy policy carefully. If you do not agree with the terms of this privacy policy, please do not access the site.
We are committed to protecting your privacy and providing a safe and informative online experience. This policy aims to clearly outline our practices regarding data collection and usage on the Krabbe Disease website.
Information We Collect
When you visit the Krabbe Disease website, we automatically collect certain non-personally identifiable information about your device and your activity on the site. This information helps us understand how our website is used, allows us to improve its content and functionality, and ensures its security. The types of information collected include:
- IP Address: Your Internet Protocol (IP) address is a numerical label assigned to your device by your Internet Service Provider. We collect your IP address to track and aggregate non-personal statistical information, such as the geographic areas from which users access our site, and for security purposes.
- Browser Type: We gather information about the type of web browser you are using (e.g., Chrome, Firefox, Safari, Edge). This helps us ensure our website displays correctly across various browsers and allows us to optimize for different user environments.
- Operating System: We collect data regarding the operating system of your device (e.g., Windows, macOS, Android, iOS). This information is crucial for optimizing our site's compatibility and performance across different platforms.
- Pages Visited: We track which pages you visit on our website, the time spent on those pages, and the order in which you navigate through the site. This helps us understand user engagement, identify popular content, and discover areas where we can enhance the user experience.
Cookies
Our website uses "cookies" and similar tracking technologies to enhance your experience. A cookie is a small piece of data (text file) that a website stores on your device to remember information about you, such as your preferences or to facilitate analytics.
We use both "session cookies" (which expire once you close your web browser) and "persistent cookies" (which stay on your computer until you delete them) for various purposes:
- To ensure the proper functioning of the website.
- To collect anonymous statistical data about website usage (analytics).
- To remember your preferences and settings for future visits.
You have the ability to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser settings to decline cookies if you prefer. Please note that if you choose to disable cookies, some features of the Krabbe Disease website may not function correctly or may be unavailable.
Third-Party Services
We may engage third-party companies and individuals to facilitate our Website ("Service Providers"), to provide the Website on our behalf, to perform Website-related services, or to assist us in analyzing how our Website is used. These third parties may have access to your collected non-personal information only to perform these tasks on our behalf and are obligated not to disclose or use it for any other purpose.
Examples of third-party services we might use include analytics providers (such as Google Analytics) to help us understand user behavior and improve our site. These services may collect data sent by your browser as part of a web page request, including your IP address and cookies. This information is used to compile reports on website activity and is subject to their respective privacy policies. We encourage you to review the privacy policies of any third-party services that may interact with our website.
Advertising
The Krabbe Disease website does not directly display third-party advertisements. We are focused on providing information and support related to Krabbe Disease without intrusive advertising.
However, please be aware that some of our third-party service providers (e.g., analytics services like Google Analytics) may collect data which they use for their own purposes, including to display advertisements elsewhere on other websites or platforms, in accordance with their privacy policies. We do not control these third-party practices or the advertisements you may see on other websites or platforms as a result of such data collection.
Children's Privacy (Under 13)
The Krabbe Disease website is not intended for children under the age of 13. We do not knowingly collect personally identifiable information from children under 13. If you are a parent or guardian and you believe that your child has provided us with personal information, please contact us immediately. If we become aware that we have inadvertently collected personal data from a child under age 13 without verification of parental consent, we will take prompt steps to remove that information from our servers.
Changes to This Privacy Policy
We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page and updating the "Last Updated" date at the top of this Privacy Policy. We encourage you to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.
Contact Us
If you have any questions or concerns about this Privacy Policy or our data practices, please do not hesitate to contact us: